Friday 6 June 2008

Winning Streak (Day - 6)

Day -7 was pretty similar to Day -8 with perhaps a little more fatigue. After bloodwork, clofarabine infusion and a check by Dr. Chaudry, I was on my way home again last night! I even did a long walk last night as it was beautiful outside. I'm soooo grateful for each extra day I get to sleep at home and can hardly imagine it's Friday and I haven't slept here yet. My pass streak will certainly end this weekend, as the next drug on the list (on Sunday) requires me to shower, change linens and clothes every 6 hours. Thiotepa is excreted through the pores and will burn the skin if these precautions are not taken. I'll also be getting more IV hydration when I get to days -4, -3 and -2, so heading home will not be an option. I'm pretty happy with how many days I've gone so far though!

My blood counts yesterday included one slightly elevated liver function test (ALT), one which I have monitored over the past year and a half. While it's not a concern of the treatment team just yet, I will be very curious to see what the counts do today. Clof is hard on the liver, so it's not surprising the ALT is starting to rise - I am simply trying to project how fast and high it may go up...not as easy as financial projections!

For now, we'll see if I can manage one more overnight pass!

7 comments:

Sonia said...

Tricia...

That is such great news, I am so excited you got another pass last night....good for you!!

Let's keep those liver counts stable girl, you and Clof keep up the good work...!

Love Sonia

La ma tante préférée de l'autre said...

I am so glad that you got to go home again.
Those are certainly bonus days!!!
Keep up loading up on good energy.



Dominique and George

barb said...

Hi Tricia,

So happy to hear you had another evening to spend at home and that you enjoyed a beautiful walk outside..what a treat! Still out here sending prayers, thoughts, and positive energy to you.

All our love,

Barb

Mary Ellen said...

Hi Tricia,
Thanks once again for your post.It was good knowing you spent another night at home. Bob & I continue to send lots of love & prayers your way.

Love,
Mary Ellen xoxoxo

BJ said...

Another day well spent. You rock, Tricia. We'll keep doing our thing, and pray for you to be successful.
Love, BJ

Unknown said...

Hi Tricia...You are such a courageous Warrior!!!You inspire me to never give up on this journey we are on!! BTW
... You are beautiful with or without hair!!!
Gentle" Love & Light" Hugs...
Carol

Sweet Little girls said...

You are a spitfire!! Our thoughts and prayers are continuing your way!!! Good luck in the days to come!

Sheree Martin