I realize it's been quite a while since I posted. The past few days I have been pretty weak and sleeping a lot. My hands are also shaking a lot these days, so typing is a huge challenge (better than writing as I can delete)! I was at the clinic on Wednesday, and Dr. Brown calls my blood counts "remarkable" at this stage. My bone pain has decreased and nausea almost disappeared, so that is positive. New developments include some changes in my hearing, the shakiness and significant fatigue/weakness. I continue to have no appetite for food or liquid, but try to get as much in as I can. Dr. B is sending me to a hearing centre and then to a specialist to keep on top of it. Post-transplant #2 I lost most of my hearing for a couple of months, but then almost all came back. It's really hard to say if it was GVHD or related to medications, etc.
The bone marrow aspirate went well, but the full report was not back as of Wednesday. I'm not too concerned as the information is mostly for the clinical trial. I reached Day +30 last Saturday and took my last dose of one of the anti-rejection drugs, so that has eased my pill-load. On Monday I drove for the first time since May - only to the drugstore and through the Starbucks drive-through, but it was a nice step in the normal direction. On Tuesday I was able to see my physiotherapist and start a plan to get back some flexibility and muscle that I have lost.
Overall, I am still in super shape for Day +37 of my third bone marrow transplant. I know I have to just be patient, but some days I am just a little worn. I'll just hope my last few days of "investing" starts to turn into some benefit! Thanks again for your continued support...I hope everyone is enjoying the summer with friends and family...Cheers.
