Thursday 13 November 2008

Day + 154: Worth it


I feel torn whenever I visit my Grandma Gunn, who only 3 years ago lived independently, sparkled at her 80th birthday party, and travelled on her own with ease. She took care of me several times during my battle with leukemia and has always been a good friend to me. Now, since her second stroke, she is unable to speak, eat or walk, and yet she has not lost the majority of her mental abilities. It's an unfair trap to live in and certainly she deserves more. The visits she enjoys from Colleen and her family every couple of days and from the rest of us a little less frequently obviously fuel her and she is generally quite positive despite her situation, confirming again to me what powerful roles mind and spirit play in assisting the body. However, I do wonder if the moments she cherishes can truly offset the remainder of her day. It's a struggle I realize so many people must deal with. In the end, I guess I think of Grandma's own words that I came across recently reading her travel journal from a trip to Germany in 1979-1980. She and her daughter Colleen went to visit her son Bob who was in the army and had an amazing time touring Europe. Her last entry talked of the dreaded trip home - a long flight to Victoria, with several delays, 6 inches of snow on arrival and 4 days of jet lag. Her final words in the journal were "But worth it".




My acting teacher always referred to Sanford Meisner's quote "an ounce of behaviour is worth a pound of words" when trying to relay that you need not say anything to communicate to your audience. I certainly saw this theory in action when I observed my Grandma Gunn meet my 2 and 1/2 year-old twin nephews Jack and Davis for the first time in Vancouver. Her ability to speak was virtually stolen from her a couple of years ago, yet her eyes and expression said it all. Initially overwhelmed by the nine of us (two daughters, four grandchildren, granddaughter-in-law and two great-grandsons), it took very little time for her to express the joy of meeting Jack and Davis and having her family surround her. The little boys tickled great-grandma and she rewarded them with smiles. I definitely think she thought it was worth it.


The weekend in Vancouver was definitely a success and I enjoyed spending time with my cousins Grady(12) and Joelle (7) - Joelle and I trick-or-treated on Halloween and I can tell you that kids growing up in her neighborhood earn their candy! I would not have been able to handle the incline on the route a couple of months ago, but I managed to keep up! Grady is now a true entrepreneur and I reviewed his flyer route invoices with admiration. I'm also thrilled that Colleen, Allan, Grady and Joelle are coming to spend Christmas with us in Calgary! I'll have to brush up on my Wii skills.

Last weekend mom, dad and I made a quick road trip to Fort Macleod to visit my uncle and aunt, Bob and Heather and check out their new abode. They built a beautiful house just outside the town along a river, and in the past month acquired a horse named Lacy. A beautiful Palomino, Lacy was as friendly as a dog and even nudged my back while I tried to make room on my camera for pictures. It was a great visit (with both the people and animals) and we plan to return soon.

In the spirit of my new book, I really had very few health-related appointments in the past couple of weeks. I managed to see Tasha, Ryan and Talyn as well as some of their friends for some much needed catch-up and even some new Singstar! It is always energizing to be with people who are so positive, regardless of what challenges exist in their lives. I also had some entertaining lunches with a number of friends, continued to build my strength at the gym, and even started the administrative process to return to work at PwC possibly in March 2009. Life is starting to look and feel a lot more like it should.

Yesterday I was at the clinic for bloodwork and a visit with Dr. Brown - a "visit" mainly because there was really not a lot to report from the medical side of things. We made plans for next month's visit at day +180 (December 9th), including another bone marrow aspirate as well as the removal of my Central Veneous Catheter from my chest. The CVC removal will be perfectly timed as I am attending PwC's Christmas party the following day and will be happy not to have to hide all that hardware in a dress! As well, I will begin a very slow taper off of my anti-rejection drugs on day +180 as well.

To express how amazed, wonderful and grateful I feel about my life today is impossible. As grandma would say, it's worth it.

7 comments:

BJ said...

Dear Tricia,
As always, I am a little overwhelmed by your inspiring and positive Blogs. I was in tears over your visit to Amanda and her attitude in facing the struggles in her life. In your own words, "it is energizing to be with people who are positive regardless of what challenges exist in their lives." You yourself so often provide that energy in our lives. Thank you and best wishes for your future.
Love, BJ

Mary Ellen said...

Hi Tricia,
YOU ARE UNBELIEVABLE! We're delighted that you are thinking about returning to work at PwC as early as March. WOW! What a girl!

Like BJ, I was very touched by your account of your visit with Amanda, and also by the pictures you posted. Your Grandma is an amazing woman and I can only imagine her joy at seeing you all. Bob & I send her our love.

Tell Marie that I think the picture of her & Lacy is wonderful. I love the expression on Marie's face - beautiful!

We continue to send our love & thoughts your way Tricia. We are so happy that you continue to improve in strength & well-being.

Lots of love & admiration,
Bob & Mary Ellen xoxoxoxo

Louise and David said...

Dear Tricia,
You may not think it is possible for you "to express how amazed, wonderful and grateful" you feel about your life today, but you have done just that. Every paragraph of "Day +154: Worth It" is a Toast to Life.

Here's to December 9th and the removal of your CVC! We will be expecting more good results from yet another painful bone-marrow aspirate. We will also continue to send energy your way as you taper off the anti-rejection drugs. (It goes without saying that you will look stunning in your Christmas party dress, hardware or not.)

Here's to a possible return to work in March 2009! The pages of your new book are starting to fill up with the stuff of everyday living - visits with friends and family, fitness activities, work, music and fun.

Here's to more time in the country with Bob and Heather! Their new home by the river sounds invitingly rural and their animals seem most friendly. It looks like your Mom and Lacy have already formed a bond that may draw them together from time to time.

Here's to Christmas in Calgary with the added presence of Colleen, Allan, Grady and Joelle! We hope the success of your weekend in Vancouver was just a taste of things to come. Congratulations on being able to keep up with Joelle as she collected Halloween treats. Soon it will be your turn to challenge her and Grady to a wee bit of Wii fun.

Here's to your Grandma Gunn and the family that loves her so much! When David and I wondered if a few cherished moments were worth hours of silent living, we were advised to "go on the evidence". You seem to do that without having to be told. You see some appreciation for life in Amanda's face and eyes, you hear it in her laughter, you capture it in family pictures, and you even read it in the words of her own journal. You wisely go on the evidence that your Grandma's "ounce of behavior" provides. Even then, though, you realize that you cannot know anything for sure when someone you love has an "unfair trap to live in". The miracle is in your empathy, Tricia - that you live with the tension of "not knowing" in your own life and then generously acknowledge that "so many other people must deal with the same struggle".

Talk about being energized! You have no idea what you do for others when you reflect on your life experiences and write about them with such force. Just for today, we are more strongly convinced that we can continue to face the challenges in our own lives. Thank you for that.

Here's to you, Tricia!

Much love,
Louise and David

CLL SPOUSE said...

I hope you don't mind. I stumbled upon your blog while googling "neutriphils" and was really drawn in. I went back and found your 'roller coaster' post to catch up.

Love your honesty, willingness to share and the truths you bring forth. Thanks for being out there in Cyberspace. Thanks, too, for the Sanford Meisner words of wisdom in this one. So true.

Press on! Keep blogging!

ed said...

Hi Tricia,

I have trouble finding words but
BJ's "overwhelmed", works good here, I need a few tissues for my reading session.
I had a great day "in the chair" on Friday and my Qi is sent out to you during the procedure.
Thank you once again for keeping us in your journey.
Bob Dylan says " I've got nothin' but affection for all those who've sailed with me" I feel the same way for those who've permitted me to sail with them.

Love and Qi

Uncle Ed

Sonia said...

Hi Tricia!

It's great to hear about your adventures you have been embarking on....it's so nice to hear that you have had some great visits, great lunches and are looking forward to the Christmas party without all the 'hardware'!!

It's great to hear that you will be heading back to work. So often people complain about having to go to work.... but when you look at it as being well enough to work....makes you think twice!!

Love,

Sonia

Melissa said...

Tricia,
We have all said it many many times you are amazing. While I was reading your post to Al I was in Tears barely able to finish. Tears of joy, overwhelmed by all of your success thus far and more to come.
Louise sums everything nicely, HERE TO YOU!!