Monday 9 June 2008

Day - 3: ALT recovery and washroom craziness

A short post as I only last about 10 minutes between bathroom visits right now! Melphalan requires loads of hydration and bladder medications to try to flush the drug out without too much damage to the bladder. I am also still doing showering for the Thiotepa from yesterday and sucking on ice for the next 6 hours (to avoid blood flow to the mouth for massive mouth sores) so it's BUSY! Little sleep last night as well between all the bathroom visits with my IV pole and showering, redoing my central line dressings, bloodwork, etc. Hopefully I can get in some rest after the super-hydration period is over. The (VERY) good news is that my ALT was actually LOWER than yesterday, down to just above 2 times the upper normal limit. Quite incredible. Anyway, good work for everyone and I gotta run again to the washroom!

11 comments:

Patterson's Progeny said...

Wow, you amaze me, Tricia! I will think of you when I have a minor discomfort which I whine about. I am continuing to pray a decade of the rosary for you daily.

Catherine

BJ said...

Dear Tricia,
The liver news is so good it almost blots out news of the other discomforts. We are hoping those will soon be only a memory and you will be ready for the next step. Our love, prayers and admiration for you continue always.

Love, BJ

Louise and David said...

Hi Tricia,
I'm so glad we caught you on the run. Your news about the lower ALT reading is yet another miracle in your remarkable journey.

It sure sounds like you and your medical team are doing a wonderful job of combatting the side effects of Melphalan and Thiotepa as the drugs do their good work. What a battle you are waging right now, Tricia, and what a trooper you are!

Remember, we are right here, cheering you on from the sidelines! Hooray for you!

Lots of love,
Louise and David

Mary Ellen said...

Hi Tricia,
WOW! You are so amazing.It sounds like you haven't had much chance at all to rest what with all the stuff happening. And yet you still manage to give us an up-date. WHAT A GIRL!
Wonderful news about your ALT readings. We all continue to send our love, prayers and Qi ( as Ed says).

With much love,
Mary Ellen & Bob xoxoxoxo

Holly Gustafson said...

What a busy day you lead, just keeping up with personal hygiene! We feel blessed to be able to accompany you through it from afar, through your posts and our prayers, the former which we hope will continue with the same frequency and good news, and the latter which we promise will continue unceasingly.

Sonia said...

Hey Tricia,

Way to go!! That is such great news, you keep up the good work... we'll keep the positive thoughts, vibes and prayers heading your way.

You go girl...

Love Sonia

La ma tante préférée de l'autre said...

Boy oh boy that liver meditation sure seems to be working!!
Quite a busy time you are starting now,and again thank god for all your reserved energy.

We continue to keep you in our prayers.
Thinking of you ,always

Dominique and George

kbub said...

What? No pictures?

Ok. I suppose we can wait until you're spending less time in the washroom. At least you seem to be getting good internet in there, right?

Keep up the fight and the blupdates.

barb said...

Tricia,

Thank you for the quick update! Wow... they sure keep you on your toes up there, don't they? I am so happy to hear about your ALT recovery and I'm praying ceaselessly as you head into day-2 and beyond!!

Love you girl!

Barb

jaime said...

hey tricia -just wanted to wish you well... jaime.

Sweet Little girls said...

You are truly amazing!!!! Our thoughts and prayers are continuing your way!!!

Sheree Martin