Sunday, 22 June 2008

Day + 10 : Less Pain and Hair

Today was a better day. That's really nice to report. While I didn't have a great sleep again, and woke up with a headache, I did feel like I had a little less pain as well as bloating in my stomach and abdomen. I also had my favourite nurse Melanie on, and she unhooked me after my half-dozen morning infusions and I showered before 12 noon - quite a feat. She also told me my white counts had gone "kinda crazy", likely due to the G-shots kicking in, and that my neutrophils were 12.2. Yes, that's 12.2. They will definitely go down tomorrow as I didn't receive a G-shot today, but it's a pretty nice response. Go Red and White.

I was able to walk a few laps slowly around the nursing station with mom early in the day, and didn't think it was as painful. Then the doctor examined me and pressed on my abdomen as they do everyday and she was quite happy with the reduction in my pain reaction as well as the increased softness of my belly. I was able to walk again with Dad later in the day and even walk outside for a few minutes. Glorious to smell the flowers and feel the sunshine on my head. Oh yeah, Mel shaved my head today as my hair started falling out a lot yesterday. I had some nausea this evening when mom came up but I managed to walk again for a few laps before sitting down to post.

My normal team of doctors will be back tomorrow and I hope they will be pleased with today's progress. I am definitely not out of the woods with the typhilitis but hope that today put me a little further away from the heavy dark centre of the forest. Since it was such a good day and everyone has been working so hard on sending me good energy, I thought I'd try to post a very short video of me with my new hairdo. In case your computer won't play it, I've posted a picture too. I'm going to bed now in hope of a solid rest and more work tomorrow. Again, endless thanks to all.

Saturday, 21 June 2008

Day + 9 A Long Day

It's late and it's been quite a day so this will be short. Last night I didn't have a very good sleep. The docs scheduled me for a CT of the abdomen yesterday, so I had to quit drinking anything (which was just clear fluids anyway) until the CT department called and then I had to drink prep fluid (lots) for 2 hours prior to the scan. Unfortunately, it was only this morning that I got in to CT due to volume. Anyway, when I woke up after coming back from CT, the doctor had results and it confirmed not only that I have typhilitis but that it is extensive (not just at the meeting point of the small and large intestines) and it is severe. They will be consulting with infectious disease doctors and watching it for a few days before considering consulting the surgeons as well. I am already on 2 antibiotics to help control the typhilitis, but really to possibly heal I need my immune system to do that. The very good news is that since I reported last, mostly over last night, my neutrophils went to 2.2 from 0.2, which is an amazing thing. I need them to continue climbing to help prevent the thyphilitis from advancing. I know that jump was helped by the Red and White love I have been receiving over the past days. Please keep it up...but don't feel you have to buy a new wardrobe of red and white!