My vision issues continue so this will be quick. Basically MRIs confirmed disease has spread in brain and to spine. I am still processing how this could be happening but we are now into symptom control...no longer cancer control.
I have been waiting for the timing to start some cranial radiation aimed at reducing my vision symptoms and now know that will start tomorrow. Last Friday I had a CT and the mask was made. I think I will get 5-6 radiation treatments to my head in the coming week. Risks exist for things to get worse before better of course but I am ready to get going with something.
Following radiation the team also thinks doing some chemo may also be possible again with symptom control as the goal. We've already talked which drugs (IV). Nothing for spine makes sense at the moment.
Right now the way you can help me and my family the most is sending prayers, energy and/or strength to help us survive. There may be more tangible ways to help next week but right now we don't know what that looks like.
love Tricia
26 comments:
💕Dear, dear Tricia,
All we have ever been able to do is support you from afar with our prayers, hopes, energies and love🙏. We are privileged to belong to your team of Tricia's Trotters and have happily made contributions towards cancer research with you in mind🚶. In your bold stand against this disease, you have done so much to improve the lives of persons with cancer and their families.🎈
💉💊Now, as you work with your medical team to control the symptoms of your own spreading cancer, we pray for your comfort, improved vision, relief from pain and stamina to do the things that bring you joy🎶🌅🌊🎨. As ever, we are standing by to provide whatever you need us from us at this time.💒
Like you, we cannot help but ask how this can be happening.❓❓❓ An overwhelming sadness wells up inside of us as we go about our daily lives knowing that we are not in control of very much at all🔮.
🏩We hope the planned treatments that you describe here will accomplish the very best results without causing negative side effects or diminishing your tenacious love for life.
💌Lots of love and prayers,
Louise and David
Everything Louise says is what we also wish for you. We will continue to send our prayers and positive energy your way, and hope that you will get relief from whatever your medical team plans for you. We also pray for that team to come up with the best treatments for your symptoms. Our love is with you and all your family.
Bob and Betty Jo
Tricia, thanks for taking the time to update all your team... we are sending prayers and energy and lots of love ��
As you start your treatment we pray for symptom control, strength to power through and that you continue to experience those moments that make you smile �� Hugs Sonia
You and your family remain in our thoughts and prayers for ever and always.
👋Hello again, Tricia!
When I lit your candle of hope this morning, it brought you present to us as it always does.🔥 The flame is as warm and bright as ever.📅 It continues to represent all our wishes for YOU, a living miracle in our lives for so many years.😇 Thank you!
💌Love you more and more,
Louise and David
Dear Tricia,
Bob & I send lots of love and prayers for you and your family.
You are on our minds and in our hearts.
Love, Mary Ellen & Bob
xoxo
Dear, dear Tricia,
This is really sad news! 😪
Tonight Judith and I watched the "Intouchables" play at the open-air theatre in Dinkelsbühl and now we are sitting in a pub catching up on each other and you.
We have just read your latest news and are more than sorry about this update.
We're sending you tons of love ❤️, strength 💪🏼, light ✨ and energy - and an neverending army of guardian angels.
👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼👼🏼
Dear Tricia
Sending you positive vibes to you. We are also sending you tons of prayers. Your family is never out of our thoughts. we love each of you so much!
Hi Tricia,
Thursday morning was my latest blood donation. It is a time you are especially in my thoughts and prayers. Deanie and I send our love, prayers and energy to you and family.
Love and prayers
Uncle Ed and Deanie
Likia (Tricia),
I'm remembering sunny days, walking (or more likely running) home from St. Leo for lunch at a table decorated with placemats adorned with our Hawaiian names. The quicker you, Hali (Holly), and I could eat, the more time we would have to dive into our imaginations, composing stories to act out and inventing games to play. Driven by the seemingly endless energy of youth, we created worlds to inhabit completely in those fleeting minutes before the bell would ring calling us back to our desks, trying to drink in every precious moment.
I'm remembering the power of that energy, the power of imagination, the power of friendship, and I'm sending all of it in your direction. May the lightness and fullness of spirit of those three little girls inhabit your being today.
Hekele (Heather)
Love and prayers and sunshine are coming your way 💖💖💖💖
Love Tony and Carol
💕Dear Tricia,
Once again, we are dropping in to say that you are in our thoughts today.📅 Your blog is a lifeline for us. 📃The comments and wishes of friends and family seem to bridge the miles that stretch out between Calgary and St. Andrews🌏, bringing you close to us and lightening our hearts on this sunny Sunday in August🌅.
💌Big hugs and lots of love,
Louise and David xOOx
Sending you thoughts and prayers and light and hugs today, Tricia. ❤️
Hi Tricia, It has been a while since we last posted, so we wanted to let you know we never stop thinking of you, sending positive vibes and prayers your way, and we're hopeful that a little joy and laughter finds you each day. Big Hugs!!! Laura, Jamie & James
I'm praying for you, Tricia!
Hi Tricia. I have no words to express my feelings for you and your family. We are all praying and sending our energy your way and to your family. You are an amazing lady and I still believe in miracles and we pray for one for you. You are all constantly in our thoughts. Love Vivian. Many many hugs to all 💗
Tricia,
I just sent a letter to you before reading this. I am here, and I love you.
Tricia,
You are in my thoughts and prayers everyday. We are sending you all of our positive energy, strength and hope during this time. Thinking of you today and always
Love
Manpreet and Aaron
Hi Tricia,
I will do as you ask and send prayers, energy and strength. Please know that you are in my thoughts daily and send love to you and everyone in the family.
Love, Marcia xo
Good Morning Tricia,
Woke up thinking about you this morning! 🙏 Sending positive vibes, love to you today! 💐 We love you tons! You are in our hearts and thoughts.
Rob and Bonnie, Nicholas and Jessica 💕💕
Hi Tricia,
Thank you for taking some of your precious time to keep us updated. I will be continuing to send you positive energy and hope that you find treatment that quickly and effectively eases your symptoms. I love you,
Therese
The image I always have of you is with your French horn in band practice. I think I secretly envied your choice of such a cool instrument, while I was stuck with a boring flute. Ha! We had some good times. I still get flashbacks every time I hear the theme from "Dallas." Sending you much love and some fierce prayers! <3
💌Dear Tricia,
Once again, we are dropping in on your blog site to connect with you in some small way.✨ We think of you every day and are heartened by the thoughts and prayers of your army of supporters.💞 We even draw energy from the positive vibes being sent to you by so many others.🌌 As always, Tricia's Tides gives us a forum for sharing the love of friends and family. Thank you for that!
Love, light and prayers,
Louise and David💕
Just dropping by to let you know that we are thinking of you and sending love 💕
Barb and family
Well shit. I last read your blog in July- about normal and boring being underappreciated (which I totally agree) and I was happy you were getting some normal and boring while I got swept up in the wave of summer with my 3 minions at home (talk about an energy management situation!)... now I read your latest words and I can't help but be a little mad at the universe. We're allowed to be- at times like this- for brief periods... it just can't swallow us up.
I was thinking back to when I first met you 14 or so years ago on a deck at a very entertaining destination wedding that would have done gang buster's as its own reality TV show... I know you know what I mean ;) of course we had been hearing about each other for years leading up to that and the person I met fit the bill of what I had heard: smart, kind, open to laughter, open to helping, tough as nails, willing to gossip with me in a corner, and of course a total babe!
Watching you through all that has been thrown your way has just plain and simple been a great inspiration to me. I think of you when I turn to my daughter and admiringly call her a tough cookie... dealing with two older brothers, a tired mom, an affinity for owies & their coveted bandaids, and yet she always sees the happy.
You my friend, are the queen of the tough cookies. You can always deal with what's in front of you and still see the sweetness in life's simple ingridents.
Eat up every moment.
Sending you much love, light, & hugs,
Amanda & her Kanukas
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