My vision issues continue so this will be quick. Basically MRIs confirmed disease has spread in brain and to spine. I am still processing how this could be happening but we are now into symptom control...no longer cancer control.
I have been waiting for the timing to start some cranial radiation aimed at reducing my vision symptoms and now know that will start tomorrow. Last Friday I had a CT and the mask was made. I think I will get 5-6 radiation treatments to my head in the coming week. Risks exist for things to get worse before better of course but I am ready to get going with something.
Following radiation the team also thinks doing some chemo may also be possible again with symptom control as the goal. We've already talked which drugs (IV). Nothing for spine makes sense at the moment.
Right now the way you can help me and my family the most is sending prayers, energy and/or strength to help us survive. There may be more tangible ways to help next week but right now we don't know what that looks like.
love Tricia
