Short update...finished 5 radiation treatments last week. Different than the radiosurgery I did in May - shorter in length and more "widespread" in location. Objective purely to reduce vision symptoms. Outcome or success won't be realized for at least another week but I have noticed a slight reopening of left eye and some reduction in left pupil size during past couple days which gives me HOPE for next week :)
Until the eyes return walking to washroom and any other moves are really tough so mom and dad have been critical caregivers for a couple weeks now.
Dr. Nixon (oncologist covering Dr. Stewart) continues to be amazing and we will start a 3 drug Chemo cycle tomorrow bright and early. First cycle will take all day as they have to watch for drug reactions and run it real slow as it will go through my hand veins. Assuming all goes as planned, I'll feel worse later this week then start to rebound from both radiation and Chemo next week - with 5 more three week cycles after this one.
Sometime before I start the next round they will get a port or pik line in me too....making it easier to infuse treatment.
So things are busy! And very tiring! Energy limited but I have more hope the treatments will get me more quality for however long I can push this. I can read with one eye so thanks for messages love and thoughts you send. Don't be offended if j don't respond 😊💙. Love Tricia
12 comments:
Hi Tricia! As I read your post tonight I smiled when I saw the word HOPE.... and a smiley face in the same paragraph 💜
Your amazing ability to push forward continues to teach us so much about how precious life, family and friends are 🌞
As you get start chemo we pray you feel our energy and love we are sending and our prayers for quality 💟
We are so grateful for your doctors and caregivers, we know they are giving you the best care ❤
As you read this 👀 i hope you can feel the big hug I am sending 🤗
Love Sonia 😚
Dear Tricia,
Your courage and optimism continue to inspire. We send our love, prayers and positive energy, and hope the treatments will relieve your symptoms and improve the quality of your daily life. We also include your family and doctors in our thoughts and prayers.
Love, BJ
Tony & Carol
Love prayers and Hope coming your way ,you are amazing 💖💖💖
Dear Tricia,
You are totally amazing. We continue our prayers for your symptom relief and quality of life. You are very much loved by so many.
Lots of love and prayers for you & your family,
Mary Ellen & Bob
xoxoxoxo
💌Dear Tricia,
Your "short update" is a remarkable account of what you have been doing since your last blog posting and a detailed description of what you still plan to accomplish📃.
📝Last week's five radiation treatments may have been shorter and more widespread than previous ones but you still had to get there for them, go through the process and wait patiently for any signs of success👍. No wonder you are tired👩! We are relieved to hear that you are already noticing some positive changes in the condition of your left eye👀. May your hopes for more improvements in your vision be realized with each passing day.👓
🙏Now the focus of our prayers will be on tomorrow's launching of the first of six, three-week cycles of Chemo.💉 Because of your history, we recognize the pattern of an initial drug infusion, followed by a period of sickness before you can begin to rebound and finally feel better by the end of the third week.🎭 The thought of your having to do that five more times is frightening💃. However, we are confident that you and Dr. Nixon have weighed the possible benefits to you against what you must go through to reduce symptoms and improve the quality of your daily living.🌈
Your mom and dad will not falter in their love for you.💑 In them, you have the most willing pair of caregivers in the world. As for ourselves, we could not possibly be offended by you in any way❤. You have let us into your life and have enriched ours in ways that you cannot even imagine🔮.
Here in our home,🔥 our candle of hope will continue to burn in support of your own determination to push forward, Tricia. That is what you have always done and we are privileged to support you in any way we can💌.
🚶Trotting on with you, as ever
Louise and David💕
We have you in our hearts & thoughts everyday. You are amazing... as is your team around you.
Hugs,
The Kanukas
💌Dear Tricia,
If Tuesday's Chemo session went as planned,💉 you may not be feeling very well on this first weekend in September. We are praying that such treatment cycles have improved since you last went on this kind of rollercoaster ride.🎢 Having to feel worse before you can feel better must be awful.🎭 We just hope that the after effects of your first drug infusion will be less severe and shorter in duration.⏳
👩👨As your wonderful 'critical caregivers' do all they can to make you comfortable, we send an all-encompassing hug across the miles💓. May you feel the warmth of our love, too🔥.
Louise and David💕
Dear Tricia
Our thoughts and prayers are with you, your family and your team.
Love
Deanie and Ed
Dear Tricia, know that you are in my prayers every day. Much love, Michele 💕
Tricia - sending lots of love and prayers your way and to your wonderful parents and family 😘
💋Hi again, dear Tricia,
⏳We have been keeping track of the days in your first three-week cycle of Chemo. 💉As you head into the third week since the drug infusion, we are hoping that you have rebounded as you described you would. 💆It will be even more wonderful if you are already noticing some reduction in targeted symptoms.
🙏You are in our thoughts and prayers everyday and your candle of hope is burning as brightly as ever in our St. Andrews home🔥.
💕Hugs,
Louise and David
Tricia,
You are always in my thoughts and prayers. Faith, Hope and Love are three words that came immediately to my mind when I saw your post. During such trial times it is sometimes very hard to live by these words, but I have not met anyone else with so much faith, hope and love as you. ❤️
Love Manpreet and Aaron
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