Short update...finished 5 radiation treatments last week. Different than the radiosurgery I did in May - shorter in length and more "widespread" in location. Objective purely to reduce vision symptoms. Outcome or success won't be realized for at least another week but I have noticed a slight reopening of left eye and some reduction in left pupil size during past couple days which gives me HOPE for next week :)
Until the eyes return walking to washroom and any other moves are really tough so mom and dad have been critical caregivers for a couple weeks now.
Dr. Nixon (oncologist covering Dr. Stewart) continues to be amazing and we will start a 3 drug Chemo cycle tomorrow bright and early. First cycle will take all day as they have to watch for drug reactions and run it real slow as it will go through my hand veins. Assuming all goes as planned, I'll feel worse later this week then start to rebound from both radiation and Chemo next week - with 5 more three week cycles after this one.
Sometime before I start the next round they will get a port or pik line in me too....making it easier to infuse treatment.
So things are busy! And very tiring! Energy limited but I have more hope the treatments will get me more quality for however long I can push this. I can read with one eye so thanks for messages love and thoughts you send. Don't be offended if j don't respond 😊💙. Love Tricia