I’m happy to say I’ve been busy with life lately and haven’t made enough time to write a post for the blog. As usual it’s been a lot of amazing good moments, smashed in beside some pretty awful moments. Such is life. I’ll take it all if I can just keep on doing it a little longer.
On the health front, I had a couple more infusions since my last post and saw Dr. Nixon again to discuss the results of a MRI of my spine and brain. Overall, things are mostly holding, with no major changes to suggest we need to change our current plan. So I’ll continue getting the IV infusion of the 2 antibody drugs every three weeks, and we’ll check to see what things look like in another 2 months in the brain and spine. I’ll also keep my visualization of the team in my spine (and a few helpers in the brain) doing their work as well. Certainly can’t hurt ;)
I had some tremendous visits with a lot of family and friends, many from out of town, in February and early March, that were a wonderful offset to some awful realities over the past few weeks. A few pics of those visits below. The bubble of energy continues to keep me and my family above the water despite the fatigue that comes from treading water for too long and in some very stormy waves.
I’ve also made more progress on my 2121 project, creating visual pieces with short writings representing some life learnings since diagnosis almost 21 years ago- which has been a source of great energy. I decided in early February to go ahead with planning an event in June to showcase the body of work I’m creating, irregardless of whether I am physically there or not. I had debated moving ahead with it without the certainty of my future, but then realized it doesn’t really matter. So in June the work will be shown, and I’ll be there either in person or in spirit. I hope to share some more details on that very soon.
 |
| Grady my "little" cousin and godson |
