Celebrations bring small improvements

I'm happy to report that I feel a wee bit stronger than when I last posted. While I'm still challenged by the same side effects, I puff a little less out of breath, can again walk the loop around our house, and haven't lost weight the past few days. Perhaps its all the Olympic fever motivating me! Of course I know it's more likely the continued energy I receive from everyone each day.

While I was disappointed that my plans to go to Tasha's cabin in Saskatchewan had to be deferred, I was lucky to have some of Saskatchewan come to me. Shelley Boyd and her mom Marilyn came to visit me and mom (and dad!) for a couple of days. Shelley lives in Montreal but was back in Regina for a while, so when my plans changed, she and her mom made quick plans to fly to visit us. Our moms have been friends before we were born, so we have known each other forever! While the time was too short and activities were limited to sitting, visiting and eating (and a few naps for me) - it was really awesome to hang out with old friends and feel normal again.

Monday was Day +60, a milestone for the trial, so I was at the hospital getting extra tests and bloodwork, as well as some follow up yesterday. The numbers continue to look good and the doctors are happy. With that news and the feeling I am making small improvements on the strength side, I am happy too.

Friday we're hoping to celebrate Mom and Dad's 40th anniversary (Aug 3rd) and Dad's 60th birthday (Aug 27th) and go out for dinner with my brother and Dana (babysitter pending). Since neither Mom nor Dad wanted a big party we decided to send them to a small island - Maui. Actually they had already planned to go in January so we just made it a gift instead! Not that creative but they love Maui so why risk it!

So I'll deal with my shakes, aches and fatigue...there's too much else to celebrate! I hope you enjoy every summery day before they're gone! Cheers