A good week and uncertainty

This week has been a good week overall.  I had a wonderful birthday Sunday with a beautiful and delicious cake as you can see - Jack and Davis were away with their dad so it was Talyn, Tasha, Andrew and Mom and Dad.  The next night mom, dad and I dined at the Keg near their place so that was also great.

Tuesday I had my 5th radiosurgery appointment and also had an appointment with Dr. Voroney.  I had expected to get another schedule of treatments and perhaps find out which of the 5 tumours (there were still remnants of the 2 larger ones that were surgical cut our a few weeks ago) had been treated.  My hope was that he wasn't going so say the one near my brain stem was to difficult to treat or something similar.

I found out instead that every treatment had been hitting multiple tumours and that my treatment Wednesday was my last for now!

So next steps are that I will see Dr Kelly my surgeon in just over a week and then get an MRI late August and see Dr. Voroney shortly after to review and assess next steps.  There is certainly the possibility that I will need to do more treatment or surgery depending on what the scan shows.  And the risk of seizures or other neurological incidents remains.  I can't drive for at least 3 months, and if I have a seizure that changes as well.  


The coming weeks will likely be a bit harder physically than the last week has been - the benefit and the effect of radiosurgery is delayed, so headaches, nausea, and continued tiredness and balance issues are very likely.  Mentally, it will be managing the uncertainty of how effective the surgery and treatments have been and what the 3 month scan will look like.  I also may require some medication for headaches which may affect my brain.  Still many unknowns.

After my treatment yesterday you can see me ringing the "last treatment" bell.  I had rung one similarly after my last herceptin treatment for breast cancer in 2015.  They didn't have such bells while I was doing treatment for leukemia.  I rang it pretty loudly.

I continue to be overwhelmed by everyone's wishes, thoughts, prayers and energy.  It has helped me tremendously while in hospital for the surgery and during the radiosurgery treatments.  I will continue to lean into your bubble of energy as I navigate the next few months.  

Cheers and love,

Tricia