I had a low-grade fever for a few days mid-month and eventually got better without a visit to the clinic. Nice. The rest of the month I spent quite tired...March looks to be better on the fatigue-front.
On a rare night out with Tasha, we took in a most amazing musical experience at Jack Singer listening for an hour and a half, no intermission, no warm up - to The Fray. I downloaded their album when I got home, and wondered if the drummer was single?
Jack and Davis were over at Mom and Dad's for dinner last week and I played "tickle monster" with them as requested - where they bounce on Mom and Dad's bed and I kneel in the middle, stretching my arms out like an octopus trying to tickle them while they squeal. They know my game as soon as I arrive. I hadn't seen them for a while and Jack said "I really missed you". I guess tickling is my forte - Talyn requests "Auntie Tricia tickles" most nights that I see him. The twins prefer the heartier version of my craft. It's wonderful to have something that little boys love you for.
Since December I have been noticing dark spots on my skin - they almost look like bruises, and they have been increasing in numbers, spreading up and across my torso since then and getting darker. My doctor has seen it (bloodwork is all good) and I am seeing a specialist later this week to test whether it is a form of rejection or not - post transplant #1 I had skin Graft-versus-host-disease of the skin and had to do a light therapy treatment so that it didn't thicken. But this is far more extensive - I really look like a leopard from the thigh up to my neck. And then there's my neck which still has an open wound from last summer when I fell and my skin graft was aggravated. Seeing my plastic surgeon next week too and may need another graft. My bandages cost $5/day, and I am really tired of my neck needing to be covered all the time, not to mention how seized up my upper back and neck muscles are while they try to accommodate the wound. Skin is just skin, and I know as long as it's not necrotising faciatus I should be happy, but I am sick of looking at my skin right now.
I have been helping do some creative work to assist in finishing a book that Ryan has created that talks about the happiness you can find even while facing cancer and death. He has taught me so much. Assisting with it breaks my heart and fills it with a unique energy all at the same time.
February I worked a little too much (fixing that don't worry) but liked that a client reported that they loved working with me...nice to know I still know what I am doing at work after a 3 year break. Last night I left the office, worked out with a friend, had a steam and went to Costco, spent too much, bought too much, did another workout to haul all the stuff up from my parkade, watched PVRd Grey's Anatomy and went to bed early. There were so many nights in summer 2006 that such a month and a night seemed totally impossible and an unfair dream. Guess you need to keep dreaming.
Leukemia & Lymphoma Society asked me to be the honoured hero for the 2010 Light the Night Walk in September.
Last summer a friend of my dad's gave me an orchid plant for good energy. I loved the plant - Dr. Aung has orchids all over his clinic in Edmonton. The flowers just seem perfect and simple. In the Fall, the flowers all eventually fell off - I googled to find out that once that happens you are to cut the stems down, so I did. Just 2 little sticks. Months passed. Every week I watered with the little orchid food. Nothing. Sticks. While I was in Maui for 2 weeks in January, I didn't have anyone look after my place. No water for the orchid (sticks), no orchid food. When I came back, I sat down on my sofa and looked over and saw a one inch sprout coming out of one of the sticks! In the absence of water and food, the orchid had not only survived, but it grew. And since then I have watched the sprout grow longer and pop little buds and the buds get larger. And yesterday the biggest bud opened into a beautiful flower....not totally perfect - it has one petal that is like Nemo's fin, but beautiful. Amazing what can not only survive in the face of challenge but grow into something beautiful.
4 comments:
Thank you for sharing your story Tricia, we are hoping to visit Calgary soon.
Love and Qi
Uncle Ed
What an interesting month February turned out to be. It is nice to be loved by little children (and by zoo animals, as long as you are feeding them.) Sorry to hear about your skin problems. Let's hope that the doctors can do something about them. We continue to hope and pray that all will turn out well. In the meantime your continuing toast to life is inspiring.
Love, BJ
Wow, that hippo's mouth looks pretty big! What wonderful pictures Tricia. Thanks.
"Tickle Monster" sounds like lots of fun. No wonder your little boys love the game. I found myself laughing as I read your description.......you paint wonderful pictures with your words!
I sure hope your skin problems clear up and that your visit to the plastic surgeon leads to a solution to your neck wound. Bob & I send lots of prayers and love your way.
Love,
Mary Ellen xoxoxoxox
Dear Tricia,
Your random bits from February come together in another of your powerful images of the ebb and flow of life - of "Tricia's Tides" to be exact.
Congratulations on being asked to be front and center at this year's Light the Night Walk. That is so fitting! Many of us had never even heard of that event until you invited us to join your team. Now it is an annual happening.
Good luck with both of your scheduled medical appointments. We hope they result in satisfactory solutions to the health problems you are currently experiencing. In your robust accounts of your latest adventures, we sometimes lose sight of your ongoing vulnerability. You are our miracle after all!
The completion of Ryan's book must fill you with conflicting emotions. The book's going to press signals a goal reached by Ryan and a whole new beginning for his readers. We intend to be among them. Thank goodness, too, for your close friendship with Tasha in these most difficult times.
Of course, we never imagined you to be a "tickle monster" but Jack, Davis and Talyn have the inside info on that one. Today's antics with those "little boys who love you" will be tomorrow's memories in their grown-up years.
Your zoo encounters with giraffes and a wide-mouthed hippo made us laugh right out loud. No wonder you forgot what you ate for lunch! Like life itself, you have a magical way of mixing fun and fancy with hard-hitting reality.
In closing, Tricia, we love your story of the persistent orchid which is all the more amazing for its struggle and imperfection. It just goes to show that as long as there is life, there is hope. You are so right. . . we need to "keep on dreaming".
We hope to see you in person very soon, Tricia. As your Auntie Marcia often says, "I will hold you in my heart until I can hold you in my arms".
Many thanks and much love,
Louise and David
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