On arrival, we found out that our hotel had oversold the first night and we were transferred to another hotel, which was very disappointing. The next day however, the hotel upgraded us to a large suite overlooking the pool areas and tried to make up for the inconvenience with free drinks, champagne and breakfast! After that we stayed with the Morin's, friends of our family from Regina who now have a beautiful place in Scottsdale. Between the upgraded hotel night and Linda'(below, with Mom and I) and her incredibly gracious hosting, we really felt quite pampered. We were even lucky enough to see Dan and Jan Marce, old Regina friends as well, as they were visiting Morin's at the same time as us. We caught up on lots of years and laughed about a lot of old memories.
Saturday night was a highlight, as we had court side tickets to the Phoenix Suns. Our seats were just below the height of Shaq O'Neil's head (and slightly above Steve Nash's)so it was pretty exciting! Our seats came with free food and drinks as well, so the whole night went by far too quickly.
During the day we spent most of our time shopping...I was able to find some pretty great deals including new hair! I am all ready for the next few months when my short hair-do will become none again...
Returning to Calgary early last week, I visited the hospital for another "day one" - this should be my last round of this particular mix of drugs, given the upcoming plans for treatment change. Even if the transplant does not get approved, we'll be moving to something more aggressive, so a change is coming. Dr. Brown indicated the application would finally be mailed this week to Ottawa for Health Canada's review, at which point they have 30 days to render a decision. I also met with one of the transplant nurses who arrange the "workup" for transplant as well as the collection of stem cells from Brandon, so I have a few more details now about that.
I have a range of emotions toward the upcoming months:
- excitement to actually have at least a tentative plan
- stress over the application getting to Ottawa in time for them to review it and still make the May 1st timeline
- worry over whether they will approve it and what my limited options are if they don't
- slight panic for a list of things I need and want to get done prior to admission as I won't know how long I'll be in hospital
- fear over how I will fair with the aggressive new drugs included in the transplant trial and the possibility that my lungs and liver won't hold up.
Luckily, I keep really busy and don't get too swallowed up in all of these varying emotions! I have been continuing to meet up with various friends and family lately, and continue to value these times more and more every day. I have also been more focused on maximising my strength with more exercise and careful eating. In addition, recent changes with the Leukemia & Lymphoma Society have arisen and I have decided it is the appropriate time to step away from the extensive volunteer roles I had there, to enable me to fully focus on my health in the coming months.
I am fortunate that warm weather (in Scottsdale and Calgary, anyway!) has given me some energy to take on this next phase...I wish you warmth as well! Cheers
7 comments:
Dear Tricia,
Thank you for your latest update. We are always interested to hear about your 'follow the sun' trips as they seem to have such a healing effect. Phoenix sounds particularly attractive and we are glad you had such a good time.
We are keeping you in our thoughts and prayers in the upcoming weeks and know you will get everything done before May 1. May your journey be a safe and successful one.
Love, BJ
Hi Tricia,
Ditto to all that BJ said. Bob & I are also keeping you in our minds and hearts and prayers. Love you!
Love,
Mary Ellen xoxoxo
PS. You're new hairdo is fabulous!
Tricia,
Love the hair! It looks great....
Cheers,
Sonia
You are the busiest chemo patient I know! You are in my thoughts. We need to arrange another movie night before you go in too!
P.S. Love the hair!
Dear Tricia,
We have read and re-read your latest posting with interest and wonder. In spite of all that looms on the horizon for you, you are still able to experience the disappointment of changed bookings, the pleasure of a hotel upgrade, the thrill of good seats at a sporting event, the pampering of a friendly hostess and the fun of a relaxing evening with old friends. The accompanying pictures highlight your Scottsdale experience for us. Thank you!
We noticed your new hair right away; it looks so natural and right for you. It's a perky choice that will serve you well when your own cropped style disappears altogether in the next few months.
The outline of your emotions as you consider taking on "this next phase" is helpful for those of us who do not know what it is like to have to make such a choice just to get a chance at life. In our own way we do feel a measure of the excitement, stress, worry, panic and fear that you describe; but our anxieties can hardly be compared to what you are going through yourself ... or to what your parents, Brandon and those closest to you must be feeling at this time.
Your decision to let go of your volunteer roles with the Leukemia and Lymphoma Society sounds timely and wise. As you focus all your energy on your health we will keep sending positive thoughts and prayers your way.
David and I were away during the past week on a 4-day rail, sea and road excursion to Norway. We had a great time from beginning to end. Just before we boarded our train from Newcastle to St. Andrews on Friday evening, we dropped into the Cathedral Church of St. Mary to light side-by-side votive candles for you and Tasha again. At our last glance, they were burning there together, strong and bright in the darkness, filling us with hope.
Lots of love,
Louise and David
Tricia,
Great pics of Shaq, Nash and of course you! Your hair looks great with that big smile.
Good to hear you had a nice trip to Phoenix and area and were able to enjoy the high life down there.
I agree with qtlibrarian and wonder how you keep so busy. Good on ya!
Chad - CTAPP 07 & Fellow Regina High School Alumni
Tricia,
Great pics of Shaq, Nash and of course you! Your hair looks great with that big smile.
Good to hear you had a nice trip to Phoenix and area and were able to enjoy the high life down there.
I agree with qtlibrarian and wonder how you keep so busy. Good on ya!
Chad - CTAPP 07 & Fellow Regina High School Alumni
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