This week I realize that baby steps are not always small. When I started another chemo "day one" last Wednesday, I had a tiny bit of news that suggests there may be some momentum building on my next treatment steps. That morning, Dr. Brown had received an email with a draft contract concerning the clinical trial attached to it, a final step in the application process that I had expected would take several more weeks. I also found out that results from an extensive ultrasound I had before Christmas - it indicated the surgery performed last year to remove the tissue infected by the flesh-eating disease did not damage the blood vessels in my neck and chest significantly, so that a central line (this would be my fourth) should be able to be inserted for the next stage of treatment. Just yesterday, I went for an echocardigram, or an ultrasound of the heart, which is just one of many tests that I will undergo prior to the next stage of treatment. While none of these events means that the clinical trial will be approved, it is just a tiny bit of hope that this waiting period may soon be over.
This week included a lot of other small treasures, including another Survivor draft lunch with friends Shannon, Julie and Laura, a "mini-reunion" with some high school friends, a 1st birthday for an adorable little boy named Alex, a day-trip to Fort MacLeod to visit Bob and Heather, and catching 2 awesome movies with Mom.
Last night, we had a Wii bit of fun - I probably laughed the hardest I have in months, as Dad, Mom and I worked up a sweat bowling, golfing and playing tennis right in our living room. It was also the first time in history that Mom has finished a golf game and even better she beat Dad (by 10 strokes). The Nintendo Wii could actually be better than my training and physio for its positive effects both physically and mentally. I'm actually a bit sore today. From laughing and Wiiing....
I witnessed a significant demonstration of the power of a small soul when Tasha, Talyn and I visited the Zoo yesterday morning, after my echocardigram. It was a beautiful warm day so we decided to do something fun, knowing that later this week Tasha's test results on the status of her cancer would be in, and the focus turning to treatment plans would not be so fun. During our visit, we were introduced to Malti, a baby elephant born in the past six months, who looked absolutely tiny under her mother, but pranced about with enormous confidence and strength. In speaking with the zookeeper, tiny Malti actually weighs 490+ pounds although Tasha and I both felt we likely could scoop her up and let her sit on the bed at home! We both agreed despite a fairly smooth week on the health front for both of us (compared to last week), Malti was the highlight of the week!
3 comments:
Hi Tricia!
Thanks for the update on the positive news!
You sound like you have been busy enjoying the Wii things in life, which so often many of us don't do....until we are gently reminded that those are the best things in life! Good for you.
With all that golf practice you are all doing, we may need to take on some of our uncles again at Regina Beach! You'll have to carry the team, I went virtual golfing on Saturday and I didn't pick up my game until about the 14th hole.....
Cheers!
Sonia
Dear Tricia,
So... the waiting continues for you and ... for us, standing in the wings! From what you write about recent test results, you are ready in every way whenever the GO AHEAD is given.
Yours is not a passive waiting, though. We enjoyed reading about your busy week of fun activities and about your evening of Nintendo Wii competitions with your mom and Dad. Marie must be basking in the victory of the only golfing coup she will ever have over Lou.
We think we understand why Malti was the highlight of Tasha's and your week. That resilient little elephant is deceptively small but remarkably strong - an apt symbol for each of you at this time in your life. "Malti" could become a forceful mantra in the treatment and recovery period that is ahead of you.
When David and I were in Newcastle on Tuesday afternoon, we found the beautiful Cathedral Church of St. Mary where we were able to light side-by-side votive candles for you and Tasha. We watched those two flames burn bright and strong and thought of you, together in battle and in victory!
Much love,
Louise and David
Hi Tricia,
Thank you so much for coming to my 1st birthday! I hope you enjoyed the cake that my Mommy made you take home. :)
I love Malti too, she is really cute. I know you think she is small, but I think she is really big! She and Richard, the baby giraffe are my favorites at the zoo.
We hope you can come over for another visit again soon! I sure like playing with you and making you laugh.
Love,
Baby Alex
xo
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